7 Comments

  1. Kate Luella
    @ 11:57 am

    Wow what an amazing post. I feel for you on all your points, I understand your frustration at school changing his class mates, wtf? Can’t they at least discuss with your first considering his diagnosis. If our school does that heads will roll. My aspire boy is only on prep this year, but I know what u mean by them ‘not bad enuf’ but still with issues just under the surface, and of course mums usually bear the brunt of that bad situation as we are the ‘go to’ person when any tiny thing goes wrong. I hope things improve for you guys ASAP. Best to give that school a bit of education on aspies too I think! Idiots.

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  2. BushBelles
    @ 12:38 am

    I connect with so much of this post. My boy is 10 and we are all living and learning every day with his diagnosis. No 2 days are ever the same. I dread appointments and exhaustion is a constant part of my life now. We have been judged, bullied, ignored etc etc. The Principal at his school cannot stand my son or us. She shows complete contempt for us because she cannot deal with the issues, meltdowns etc. I have only ever asked for help because it was at school where his behaviour became so bad when it was realised he was being bullied so badly- by the principal as well. We cannot change schools as we live in a small country town. Some days are hell others are magnificent. We go with it. I take alot out of what mothers of these kids write as it all helps me deal with my emotions and helps to know I am not alone. If I lived closer I would bring a bottle of bubbles and chat. Thanks

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  3. Kim-Marie
    @ 1:09 am

    Oh, it sounds like whatever you do, there’s another option or obstacle in your way. I know a few people who have spent a lot of time and effort (and money!) trying to get their children to a level where they can cope better, only to discover they are now classed as not needing help, when it was the help that was making the difference.

    A very difficult situation and I wish there was an easier solution for you. x

    Reply

  4. Sophie Allen
    @ 10:47 am

    I think it is very unusual that he wouldn’t be allowed an aide, at least for a few days, perhaps getting re-assessed for that would be a good idea. My 9 year old is really good friends with an Aspie and has been for 5 years. I see so much of what you describe in him, but he has a full time aide at school, and has many physical meltdowns. I just don’t know how my friend, or other mothers cope, it is such a massive worry and responsibility. It is so excellent that Mr T has someone that he can calla best friend, that is really awesome. You sound like you have been through all the scenarios in your head, and weighing up the pros and cons of whether to switch schools or not.
    I was a bit shocked that the principal didn’t know how to handle him, I think there may be some training needed.
    Good luck with your decision. #teamIBOT

    Reply

  5. Twitchy
    @ 1:52 pm

    By the sounds of things, you are in Vic? I really hate to that things are worsening here and fewer kids are now eligible for funding where they once were. It’s a disgusting state of affairs and almost dire at the Secondary level. My son is in Year 8, needs constant assistance and officially has no funding because he has language! The school is doing the best it can but will try to get funding in other ways- autism is not likely to be one of them.

    Reform is desperately required in this area and it differs across states. For instance, a student in Queensland may be much better off than one in Victoria. Individuals and society benefit in the long run if investment is made in them early. In an election year, this is something we need to be very vocal about.

    Reply

  6. EssentiallyJess
    @ 4:35 am

    Wow that sounds extraordinarily hard! I really feel for you. It’s hard enough juggling work, kids and all their friendship issues without that extra dynamic. I really hope you can get some more practical assistance soon. It’s shocking that it’s so hard for you 🙁

    Reply

  7. Maria V
    @ 6:55 am

    Oh Kellie, I hope some kind of solution will appear soon! But it’s great to hear Mr T is doing well. Re: being not paid sucks, I’m in the same boat with you. Also thinking of coming back to work, dealing with invoices killing all creativity. Not to mention we need those money to support our children, to buy food and pay rent! And, you have 3 kids!

    Reply

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